Outbalancing the negativity with the positivity as a mother

My last blog ended positively when sharing my joy of celebrating my son's 10th birthday. Just that life is with ups and downs. The following day, he was vomiting and sitting on the toilet from a stomach flu. He was saying how hard a lesson he has learned, not to pick food off the floor and eat it, not eating so many candies in one-go, not wearing only one layer of t-shirt in the cooler days, etc. Anyway, I don't think he had been that sick for as long as he could remember (of course, he had been there before, just that he doesn't remember it anymore.) He did shape up after a day and life went on as usual. He went to school on Friday, and on Saturday he went for his football match. On Sunday, he got another bag of candies from his Chinese teacher who doesn't seem to understand that I dislike bribing children to learn by candies or junk food, so there we went with the so-called lessons he learned. He was sick again.

 

Meanwhile, at the daycare where Sami's goes to, stomach flu is going on too. Sure enough, it didn't take long for her to join the club. I have not seen so much mess in my life within a short-time frame. Loads of laundry and lots of toilet and puke bucket cleaning, in the hope to stop bacteria/ virus spreading any further in the household.

 

Because of the stomach flu, we have slowed down the reflux medicine weaning. Unfortunately, after having been to 3 hospitals for Sami, we just don't have answers on Sami's frequent cough, snot, poor eating, and all. At times, I end up being the doctor, as doctors have asked me what I wanted instead.

 

It's awfully frustrating to someone like me who is crazily solution-orientated when there is just no solution! At work, when I am confronted by challenges, I often manage to find ways to handle it, to solve it, and feel satisfied by that. Now with a child who is often sick, and who is a toddler with a strong sense of what she wants and doesn't want, I am in need of an infuse-load of patience.

My hubby then reminded me when I said I hope she will feel better soon, that it is just the beginning. I felt so depressed when hearing that, while his point is to tell me "get used to it, that's life about having kids."

 

Am I not ready for kids? Sometimes it sure feels like so, because of the amount of failure I feel having as being a mother. I love my children and I won't trade them in for anything else.

 

At the same time, undoubtedly, I miss my pre-mother life too. I wish I realized back then that I actually had loads of free "ME" time. What did I do with that?!

After my second-round pregnancy, my body betrayed me. I have gained weight. That hurts my self-esteem. I do want to look good and feel sexy again. Luckily, there are people out there who are willing to tell the world that it's OK to show your motherly figure. It is what comes along being a mother, having a baby inside you for 9 months each time, and for those who have breastfed, realizing that your breasts can actually do so much!

 

 

My tiredness took over my sex life. Sleep is more important than sex to me now. When we do have sex, it's often a quick one. My less-sexy body makes me at times uncertain about my atrractiveness even though I know my hubby understands and does not complain. I know good marriage needs often good sex in the formula. It's an investment in our relationship.

 

I remember seeing someone posting on a mother support Facebook group, wondering why there is so much negativity about motherhood. I ask myself the same thing. I guess it's a natural thing to do, thinking about the negativity more than the positivity.

 

So I ask myself then what about pleasant events? Are there any pleasant events that I can do to outbalance it? Something that I can really do, and not wish to do.

Jogging/ walking

Yes, I do that from time to time after lunch break at work. Or when I'm up for it, going for a run after kids have gone to bed.

Thinking, "I've done a full-day of work, and I've done my best."

It's the latter part of the sentence that is most important. It's like a pat on the shoulder, but to myself.

Having lunch with my colleagues
We laugh over silly things and talk about serious stuff.

Shopping

I was never crazy about shopping until I started my career, since I didn't have money to in the past. And my loving shopping tells me I'm just like any other ladies who enjoy that.

 

Helping others

Even my schedule is busy, and maybe I sometimes overdo it, I love the idea of being able to help others. Maybe it's because I know how life sometimes can be when you feel helpless and when someone comes around the corner, it's like bringing you warmth during an ice-cold winter. Last week, I brought some food over for a friend who is ill and has kids. Her smile was such a gift to me when she welcomed me to her house.

 

Blogging & Writing

Writing helps to structure my thinking, and put my life back in perspective again. Sometimes it does bring out some sad emotions back onto the surface, but maybe they are not meant to be hidden at all times.

 

Expressing my love to someone

When noticing my hubby being in a grumpy mood, I try to cheer him up by being silly, tickling him, and telling him I love him.

 

Reading inspiring articles and talking to inspiring people

Thanks to the world of Internet, I have access to a world of inspiring articles as well as getting to know a few inspiring people. They have brought me joy and encouragement in my life. They think of me, and send messages from time to time, which helps. They don't tell me what to do in life, but tell me that I am doing also a good job.

 

Reflecting on how I have improved

Thinking back how I did things and how I have improved helps. It's not easy to sit for a moment and tell myself that. Also, generally I am not the type glorifying myself, but I think sometimes it is good to look ourselves back in the mirror, and seeing how we have grown.

 

Getting a massage

This has not been something I have done for awhile. My hubby is the first who brought to my first massage, and I am very pleased that he did! Making the time for it is often the key, but it does relax myself so much that I sleep better at night.

 

 

 

 

About myself.....

When I started blogging here, I focused a lot on Sami's development, especially relating to her reflux journey. Recently, I talked about our journey as a family on a more harmonized family life.

Now I would like to turn the spotlight onto myself for a short moment. A lot has happened in my life, and definitely in the past five years.

After Sami's birth, my life has gotten onto a faster roller coaster, and as a mother, you will continue to fight for your little one, so you do your best to remain strong. I have gone through a period of postnatal depression, which was definitely one of the darkest moments of my life. I was lucky to have my husband to lean onto.


Often families with attention demanding children whether it is medical or due to other reasons are struggling on their own with not as much support as needed. Understanding is hard to obtain, and that's not because people around them don't want to, but it is sometimes just hard for others to know what it really involves.

For instance, reflux children often have bottle and food aversion, and the feedback you get from people around you may not always be helpful, because they don't deal with your situation daily. They have no idea the intensity of this.

Sami's aversion is luckily not as bad as some of the refluxers that I've got to know, but still it's very tricky. We are told that she is now missing certain vitamins, calcium and iron. As a mother, I don't mind her being small and short, but I do want her to be healthy. I try all sort of food, menus, different cooking style to get her eating more. Sometimes my son will get jealous of his little sister for the amount and variety of food that she gets, and when she refuses to eat them, he then finally gets them. Sure enough, I try to make as much for both but that would be way too much, and I try to explain to my son why this is happening. He tries hard to understand.

Refluxers are also known to be poor sleepers. I don't know if this is why Sami doesn't sleep through the night. She is now 19 months, and answering whether she sleeps through that night is like playing Russian roulette. 9 times out of 10, I am the one getting up for her as my husband just can't hear her crying. I don't always run to see her, but I'm awake by her crying. I struggle to fall back to sleep at times or she wakes me up again after I have fallen back to sleep. But the 19 months of broken nights do impact my life.

In general, in the current society, women face an ever-increasing demand on playing the role of multi-tasking. We are expected to work while taking care of things around the house. We are more detailed-orientated, and therefore lots of things are taken care of by us.

I am one of those women. I work full-time, and have two children to take care of. My ex, my son's biological father, has left for China for his career, so Julian is with me the whole time which I don't mind or complain. However, it does take time for my husband and Julian to find their ways to build a step-father & son relationship. It's not easy for either of them. Often I deal with guilty feelings because of this too. I also try to facilitate between them, but sometimes I feel I am stuck between them.

Last year, I have been diagnosed for the first time that I have chronic migraine, which explained a few symptoms I have had in the past years. I am now on lifetime medication, and one of the side effects is gaining weight. So baby fat plus this doesn't make it easy on me, and this puts a heavy load on my self esteem. Comments made by others are harsh but at the same time I think they are true. I have gone fat!

With my illness, my experience in depression, abuse, the usual day-to-day push and rush, and "entirely-for-others" approach, I end up feel drained, hardened and disconnected from the inner me.

In the Chinese culture, we are taught not to think too much about ourselves but others. We give and give. If we don't, then we are selfish. We are told that every one has his/ her own challenges, and our own ones should not be seen as important. We should not be under the spotlights. But is this correct? Should we keep on going?

Once in a while I do get an hour or two for myself, and I go out walking in downtown, or getting shopping for myself and the family. I find myself feeling temporarily relieved, but they are just short-term bandage over the wound within the same cycle, and eventually the same drained feeling returns.

So how do I break this cycle? How can I let go and fix this before I run out of battery? Without an energized mother, how can my kids grow up?

So I have decided to go ahead, reach out for help. At first, I wonder if I'm exaggerating things. But the more I have dug into the issues, the more I have come to realization I want to have this sorted.

My picking up on running, to be out there alone in the cold air free up my mind.

My speaking with a few inspiring people helps my finding ways to deal with scars and move on.

So I would really like to urge any of those who are dealing with all that "pushing-through" action after action, day after day, to not only take care of others, but also themselves.

Yesterday after my blogs were posted, I have received some loving complimenting feedback and a few of them are mothers with reflux children. Some are inspired by the thought of writing. I'm happy because to be inspired is great, and to inspire is even more incredible!

Sami, our little reflux fighter, 19 months old!!!

Time does go by faster with Sami growing a bit older, even though she is still not yet fully off the reflux medication that she is taking since 6 weeks old, Nexium. She is a fighter, someone with a strong character! And sometimes that explains why she complained so much when she was in so much pain with the reflux and infections bothering her. On the other hand, that's how she has managed to keep smiling whenever she gets to. Showing us how proud she is of her own achievement. She takes her time to show her milestones, but when she does, she lets us know she is ready for it. This is also why I am so proud of her!

 

 

Recently, I made a post on my Facebook telling others how grateful I am being a mom for Julian, and Sami, that I have learned to be more conscious about gentle peaceful parenting. It's a great learning process for and funnily enough, I am happy to be in it, though sometimes I struggle.

 

Then a mom who has a reflux child has asked me if that is because she is doing better, and that's why I feel better.

Maybe that I've more sleep, so more patience.

 

Actually that's not really the reason. Sami is still small to her age, size wise. We struggle with feeding at times, and her food aversion from reflux poor days gets complicated when toddler hits her (or us!). She tells us clearly what she won't allow to be presented in front of her as being food. We have followed diary free diet for over 6 months now. We don't know if it really has helped, and she is getting smarter to know we are trying to give her non-diary substitute, such as rice milk, so she has started to refuse those too. From the latest report from the diet specialist, she scores low on certain vitamins, calcium and iron. When telling some people, they would suggest to force her eating them, or they just make comments about my not having tried hard enough. Sometimes the amount of food I make can actually feed a few families, and the amount of food that ends up on the floor is so much that Sami should donate to the 3rd world countries.

 

And about sleep.... I still get up often at night for her. Sometimes I don't get up, but her crying does wake me up. At times I am too tired to get out. At times looking at the web-cam from my smart phone (thanks to the technology available these days!!!), I know she may be just crying over a dream. I am finding it harder to get out of bed in the morning simply because my body is just too tired and worn out after a long period of missing my bed.

 

 

 

So where do I get patience from? Well, no where... it's something I have to learn and earn. It's something that I must recharge myself. I have realized that I've waited long enough not to do anything about it but to complain over it. So after having spoken with a few inspiring people, I realized that there are other ways to handle this.

 

They have inspired me how I could look at things differently.

They have encouraged me to seek for help and support.

They have lent me a listening ear.

 

 

 

Surely, all these smiles I get back give me courage to keep moving in our busy hectic daily lives.

 

 

Recent visit at the pediatrician had brought us worries, as she was wondering if she had immunodeficiency. So poor girl, I had to have Sami's legs tightly held between my legs, her right arm under my armpit, and both hands holding her left arm. There were two nurses helping to hold her down and get blood out of her. Because of her small blood veins, we had to wait long for each drop of blood to fill up that tube for an extensive blood test. I felt so sorry for her, but I held my tears back, kept on talking to her to let her know that soon it would be over.

 

Luckily, the results came back alright, but the question remains why she is as often sick as she is. No idea. The pediatrician still wants to go ahead with giving her 6 weeks of antibiotics to see how her body would react to it. I just have strong doubts on it, so eventually we decided not to go ahead with this.

 

I am writing this not to ask for people's attention on us, but hope to help you inspiring others on how hard sometimes it is for families having an attention demanding child. Give these families some support, even if that is as little as just a hello. Don't be judgmental on their choices, because they are making their choices the best way they can.

 

And for those families who are still in this game, fighting for good health for your little ones. You have no idea how great your hearts are, and I hope soon one day you all can see the light at the end of the tunnel. Don't underestimate how much love you have in your hearts!

 

I still want to thank those who have been giving me support in this, even if they are just small messages left on Facebook in encouraging us. Thank you!

Toddler time..... 18 months and 10 days

Here we are... 18 months and 10 days of having Sami in our Family. People who know me or have followed my story know we have done a bit of struggling to get to where we are. We are not at the end of the tunnel concerning Sami's reflux but we are dealing with it in a more skillful way. Now when I see on Facebook messages from someone I don't know about having a reflux baby, I immediately would like to offer some help, simply because I know I've been there. I want to show them my compassion towards them even I don't know them, simply because I know how much that can mean to someone. I know those dark days well, and it is hard to explain to those who haven't been through this or any other challenging moments with a baby.

The one very nice thing I like about Facebook's functionality is its popping up automatically what have been posted in the previous years on the day. It brings back a lot of good memories, and when I see the bad experiences that were posted, then I can tell myself we have made it. I feel grateful for what I have now.

I must say though the turning point for me on really enjoying the time with Sami is her turning 18 months old. I really enjoy my Saturday morning with her, when my hubby brings Julian to play his football match. Sami and I would have breakfast together, and get ready to go out for some groceries shopping. Even though going alone is sometimes tricky with her demanding to get out and walk these days and her screaming in the buggy because she is not allowed to, I still enjoy it.

I find myself being able to enjoy it because I know what toddler can mean. (OK, I may hit myself with a stick later on realizing I actually don't know enough.... but for now, let me enjoy the moment of it.)



Toddler means they understand partially of what you say, and often it's not the part that you want them to understand or they only understand the last word of the sentence you are saying such as "you are not getting anymore cookies" = "COOKIES", or "we will have to get into the car first before we go for a walk" = "WALK". Then they get awfully frustrated at us for not sticking to the promises made. They cry with real tears, and sometimes can go as far as coughing or choking acts from mega crying. I have learned to ignore it when necessary, even it means I need to sing loud in my head to focus on driving, because keeping us safe on the road is more important than pleasing a toddler throwing a tantrum.

Toddler also means they can switch from a screaming kid to a smiling or laughing angel within a second, even with tears still dropping. Those are the moments we must try our best to remember and hang on to, because these are like water in desert. I love the moments like seeing Sami exploring her world upside down between her legs, or Sami talking more and more.

What I've learned from Julian's toddler days is to stay communicative and consistent. Toddlers like things being predictable, and in general, we must tell children at all age anyway of what they can expect happening or what our expectations are within the next coming 10 minutes, or 1 hour, or week, or month, or year. This makes it easier for kids to accept when they have little choices than to accept our decisions.

On the other hand, even toddlers already would like to have choices. I try being clear on what choices are given. I try to let go of some control to limit the drama which we may get in return. Does it really matter to us whether our child wants a green tee or a pink tee? No, so let the child choose, but make sure you do so for example the night before and explain to the child that this is the decision we will stick with the next morning when getting dressed. And when there are occasions that there aren't really a choice, then I would limit it by saying for example "food or sleep".



I remember loving the age of 3 as that was when my son could express himself much better. So I have now one and half year to bite through this stage, but it's still a lot easier than having to deal with health issues.

10 months and 9 days.... a list of things that spouses, friends, families, or whoever that are involved in caring a reflux baby can do to help....

10 months and 9 days down the road of having a reflux baby in our lives, and this remains to be the hardest thing I have ever had to handle in my life, because it's not like the harder you work on it, the easier it gets.



I've been reading tons of articles and books about reflux, and I have also seen a list of things not to be said to families with reflux babies/ kids. What I haven't seen so far is a list of things that spouses, friends, families or whoever that are involved with people with reflux babies, can do to help. So maybe I will give that a start myself, in the hope of helping other families.

• Whatsapp, text/ message, call, or drop by to ask how they are doing. Reflux families are often isolated from their social network for a much longer period than those who have kids. It doesn't mean they don't need a social life, as in fact they miss it an awful lot.
• Offer help by just asking what you can do to help them.
• Bring food along as sometimes caring a reflux baby is so consuming that putting food on the table isn't something they end up being able to. If you've kids yourself, remember the days that you just had your babies, and how occupied you were in the beginning. That's what some of the reflux families are dealing with daily.
• Take their other kids out as families with reflux babies don't get to go out often, simply because it's hard to feed the reflux babies out there, let alone some that are constantly vomiting. 
• Give them a hug as often as you can, since sometimes even though you can't help them to take the heaviest burden away, a hug helps to release the pressure.
• Help them with their household, such as cleaning if possible. With reflux babies that vomit often, the laundry pile can get real high. 
• Offer your babysitting service if you can. Even if it's just for a couple hours, and certainly if you can even give the couple a night out or a full night of sleep, you have no idea how much they would appreciate it. 
• Help them with groceries shopping, as again, getting out of the door is something some of these families struggle to do. 
• Tell them that they are doing a great job, and they are doing their best already even though right now it may not seem enough to please their little ones. By reassuring them, they will have more courage to hang in there. 
• When offering to take care of the reflux babies, ask them what they want you to do, and avoid giving excessive comments on how different you would otherwise do it. 
• Get yourself reading some reflux articles, so that you understand what it is about.
• Read the list of things that you should not say to reflux families.
• Make them a cup of tea or coffee as often as you can if you drop by. Often these moms or dads are having iced coffee or tea unintentionally.
• Caregivers of reflux babies need to rant and throw their frustrations out. Don't judge them, even if they say they regret having the kids. Tell them it's normal to have those feelings, and reassure them that they are doing a great job. Remind them that soon this will be over, and that they will get to enjoy lives again.
• When offering advices, tell them maybe those advices don't work, and that it's ok if they don't want to hear them, because often these caregivers have been educating themselves so much that they end up knowing more than those theoretically educated professionals. Also, what works for one reflux baby may not work for the other.
• If you've the time, offer yourself to go along and join their appointments with the health care professionals. Even if it's just giving a hand to hold their babies, so that they can have a clear mind when talking to these professionals.
• Just because they're not vomiting everywhere doesn't mean that they don't have reflux. Parents of children with silent reflux will tell you that you can sometimes hear it and that each child has their own tell-tale signs of an attack.
• If the mom is a working mom, don't tell her to stop working assuming then the baby will be better. If the mom wants to stop working, support the idea, but don't ask her to stop if she doesn't want to or can. Sometimes having a job out there can keep the mom going, plus they may need the pay cheque as well.
• If the mom is a staying-home mom, it is also hard as staying-home moms have no official lunch breaks, or coffee breaks. So any of your help is very much welcome.  
• Just because they are thriving, doesn't mean that they're well
• When holding / looking after a reflux baby, respect the requests of the parent with regards to things like what the child can or cannot be fed ((quantities, timings, trying new foods etc) don't try new foods without asking etc), how they should be fed, whether or not the child can be bounced on your knee, and whether or not it is safe or appropriate to lay the child down. 
• Parents know their children better than anyone. Don't assume that because you've had children before them or are "older and wiser" that you know better than baby's mum or dad. Be kind and considerate with words and learn when to step back and let parents get on with it. It is just as important as learning when to pitch in. 
• Keep an eye on mum. PND develops all to easily for mums of otherwise healthy children, never mind a mum whose child had additional needs. Learn the tell-tale signs but also pay attention to things like not eating or comfort eating as they too are signs that something isn't right.    
• All weight gain is good but the wee one might still be falling through the centile lines on a growth chart. Getting the wee one weighed can be very stressful and acknowledging that can be more helpful than you'd imagine.
• 

5 months and 24 days....

I used to think Murphy's Law should be used only on negative people, but I'm starting to think Murphy's Law can often be applied on life with a baby. On my last blog post dated on August 27th, we thought we had found the last puzzle piece, guess what, we were wrong.

The Enfamil AR that we thought was the answer to the equation got us to our lowest point in terms of the amount of milk Sami drank. She went from roughly a daily in-take of 600-700 cc (20-23 oz) down to 400 cc (13 oz). She was very constipated, and we tried all the natural methods to help her, including extra water, prune juice, olive oil, massage, legs exercises, etc. None of them worked. We called the hospital asking for advice, but we got sent away. We had to go to the consultatiebureau (health center), and they didn't have much to tell apart from what we already knew, plus suggesting us to mix the Enfamil with normal formula. We also visited our GP and he didn't prescribe anything either, so we bought off the counter laxative drink for her but as we didn't dare to give the full dosage, so that didn't help right away until we increased the dosage. Only after a week and my "panic" call to the hospital, the pediatrician who prescribed her this formula gave us another medication. However, as we put the medication in her milk bottle, it was hard to give it to her when she refused the bottle. Eventually one day, I just switched her back to the normal formula, where she drank again from.

We went back to our GP again, and this time the GP listened to me better, as I was at my wit end, and just couldn't take much anymore. Sami was waking 3-5 times up each night, simply because she was hungry I believe. Yet, I didn't dare to go feeding her as I was afraid that she would get a habit out of it. We decided then to put her back on Nexium, the medication she was first on when she was 6 weeks old. Just that this time, it was with a lower dosage.

After we started the medication, things started to improve. We also started to put thickener in her formula, and we just thought things finally were settling down, as she even had once a daily in-take of 900 cc (30 oz), which was amazing! We added solid food as well in her menu, and some things she loves and some less. She loves parsnips, pumpkin with sweet potatoes, and bread. She doesn't like peer nor yogurt that much. I find it challenging to come up with "safe" food for her reflux, since the last thing I want to do is giving her some solid food that would make the reflux worse.

Then I did one thing that I regret terribly. I tossed her old nipples (teats) for her bottle into the bin and replaced with new ones but the same size as the old ones were getting old. I never realized until it was too late that the new ones could be too hard while the old ones were so worn but were what she was used to. So the first bottle after I replaced them took about an hour for her to drink from. It was plain horrible, as she started to get frustrated so did I. We adjusted the amount of thickener, but that only made the reflux worse.

Luckily, after having shared my story out there, some moms suggested me to cook the new nipples longer to make them softer, plus making the hole somewhat bigger by using a needle that that had been heated under fire. So I did those, and yes, I cooked those nipples for an hour just to make sure! That did help, just that we couldn't find the right amount of thickener that fits into the equation anymore.

I decided to just buy the formula that has got the thickener in it, which means at least I know the amount is then consistent. Anyway, I started doing so yesterday, and yes she drank slower, but at least she seemed to be happy and finished her bottle mostly. She had again 925cc (32 oz), which broke her record. She also ate parsnips that I freshly made for her.

She still wakes up at night, but at least it's no longer 5 times per night, it's ranging from 0 times to 2-3 times each night. What I've learned is accepting to get up for her each night, then I find myself feeling less frustrated. Also even though all books and sites on sleep training tell you not to go to her immediately at night when they wake up to train them self-smooth back to sleep, I just can't stand myself being all awake waiting for her to go back to sleep which doesn't often happen, as she would often whine even more or cries. And yes, we put her to bed when she is drowsy but still awake, so she CAN fall asleep on her own. So I just walk to her when she cries at night, and put the dummy back into her mouth. She will then 9 times out of 10 go back to sleep. I'm not sure if this is the right thing to do, but it's definitely something I do to keep some sanity in me.

These days, she still fusses over the first and last bottle of the day. My hubby struggles with the first, and I struggle with the last. Probably with the constant lack of sleep, everyday at around 9, I'm just exhausted after having finished feeding her, sterilizing her bottles and so, getting her bag packed for the daycare, etc. Often I just fall asleep on the couch with my hubby lying next to me watching TV. Sami often then wakes up at around 10-ish crying a bit, not sure why she does that, but the dummy works well so far. I hate having to feed her midnight bottle, as I'm half asleep when I've to get up to feed her. Once I finish feeding her, I would most of the time be too awake to go back to sleep.

Anyway, I guess these all will be behind us in a year time, replaced by other issues. I really hope that reflux is something that will make us all stronger, and that the rest of the things would seem easier by putting things in perspective.

Luckily, we do have enjoyable moments. Apart from the feeding issue and sleep deprivation, I do enjoy seeing Sami developing. She is getting a hang of rolling over. She loves chatting, and laughing. So far we don't have the crying "happy hour" with her, while I used to have that with Julian.





Julian has also been helping out as much as he can, though it takes some effort and time for me to get him into the right mood and attitude. It took him some time to get used having to do homework, household chores, going to bed and getting ready for school on time after the summer vacation. This year he starts having homework also from his normal Dutch school, and I think it's good that he is taking those seriously. I also have to get used to having to help him more with his Chinese homework, since in the past, our Chinese nanny used to help him with that, and now we don't have any nanny for him, I've to help him with it.



I also try getting Julian to be more independent by involving him more in helping us out, like helping out in the kitchen. He does now some preparation work for me, or simple cooking, like cooking the rice. Hopefully that will help him in the future.

It takes time for all of us getting used to things that may keep changing. I try also be more relaxed and calm about things though at times that is real hard. Sometimes I do look at friends I know, and see from their Facebook photo album how things change, how their kids grow, then I know soon our struggles will be less, and we will be rewarded by more pleasant enjoyable time with the hard work we are putting in now.

We found the last puzzle piece?

Instead of just telling everyone how I have been struggling with Sami's silent reflux and feeding issues, let me put something positive now on here.




Last Friday, I called the pediatrician as I was at my wit end on how to handle her silent reflux, which causes feeding issues as well as sleep deprivation. He then prescribed us this formula which is "anti-reflux". What it does is that when the milk gets to her stomach, it will use the stomach acid that she has got, and the milk will be thickened in her stomach to avoid spitting up. It's advised not to use any medication and sometimes it's used to wean off the medication for some cases. Now in our case, the pediatrician also agreed that it may not be wise to try another medicine since we had tried 3 and she only got more miserable from them. Unfortunately, the pharmacy in our village didn't have it in stock, so we had to wait till Monday.

On Monday, Sami refused to the bottle at the daycare, so they fed her porridge by mixing her milk with rice cereal, as a desperate measure so that at least she had eaten something. So on Monday after work, I immediately rushed to pick this up. We started giving it to her on Monday evening after her bath. She took the whole bottle without fussing. I didn't dare to declare victory just yet, and the midnight bottle didn't go as well as the previous one. She fussed and it could be because she was woken up by us and we also noticed that the milk is still somewhat thicker than the normal formula she had. So down to trying out which size of teat she would need then.

On Tuesday morning, she took the bottle very well from Papa which was uncommon. Papa tried also using Stand III instead of Stand II, which is slight bigger, and she pretty much finished her bottle. At the daycare, she also took her bottles again.

Today is Wednesday, and she even took 180cc in without fussing at all in the morning while normally her morning bottle had always been a battle. And when she burps, she only has a normal small burp, unlike those major loud burps which you would expect from an adult man after their beer or so. Probably because of the milk staying in her stomach, so when she burps, she doesn't get the stomach acid coming back up which was painful to her in the past. After her bottle, she was chatting and laughing happily. Yes, I've actually got a happy camper in the house again!!!!



To a lot of reflux babies' mommies, we often feel depressed when our babies don't eat or don't sleep, or don't do both of these essential things. Our mood is always depending on how much our little ones has drank, or how often we have to get up at night. I know it's crazy, but we can't help that.

We sometimes even joke about putting our babies on ebay, marktplaats (in Holland), or any other selling stuff sites, to rent out or lease our babies. And those people who rent them can bring our babies back when they are reflux-free!

During the last few months, I've got to know quite a few moms around the globe who are dealing with similar issues as we are. And it's really amazing how much we understand each other even when we share thoughts that may sound so alien to others including moms with babies without reflux. Even though we cannot always help each other, but the understanding already makes a world of difference.

Again, I want to thank those who have been sending their love and care to us during this tough period, especially those who even offered to help. This means a lot to us! Now let's hope the peace stays with us, so that we can enjoy our family time more.

Coming Friday, Sami will be going to our trustful nanny for two nights stay-over. Yes, I'm so darn lucky to have such nanny. I will then spend some time with Julian, as I hardly spent time with him during this summer vacation, and Friday will be his last day of vacation. I asked him what he would like to do, and he asked to go for a movie, so we will do that then. My hubby is looking forward to getting a relaxation massage, so let's also have that done. And on Saturday, we will go out for dinner with my family as it's my dad's birthday. Some people may not agree with me not bringing our little girl out as well, but it's just no fun to her to stay out late. I'm really looking forward to this weekend, and it's not because I won't have Sami with me, but it's because we can take a mini-break while I know Sami will be in good hands plus her getting better gives me a good feeling about this. 

As a reflux baby's parent.....

I've read the other day somewhere of these top things not to say to a reflux parent, and it's so darn true!!!!

Quoted from top-20-things-not-to-say-to-a-reflux-parent

1. All babies cry you know.
2. All babies vomit you know.
3. Is this your first?
4. He’s feeding off your stress.
5. But she seems so happy.
6. Oh my baby used to vomit all the time too!
7. But he’s a healthy weight?
8. Don’t worry! They grow out of it.
9. You need to stop breastfeeding  / have you tried formula?
10. He’s just got colic.
11. She’ll eat if she’s hungry.
12. He doesn’t vomit so it can’t be reflux.
13. Sleep when baby sleeps (not helpful when baby doesn’t sleep).
14. Don’t let your child rule your life – they need to fit into your schedule.
15. Send him to me. I’ll sort him out.
16. Stop spoiling her.
17. You’re over-reacting. Just relax.
18. He just needs more cuddles.
19. She doesn’t look sick.
20. Screaming is good for their lungs.

What more can I think of?

1. Don't pay attention to how much she drinks as you will stress her out.
2. She looks chubby enough, so she doesn't look like she has feeding issues.
3. Lower your expectations on how much she drinks. 
4. She just doesn't need that much feeding like other babies.
5. Let her cry it out, don't spoil her as she will get used to having the attention.
6. Did you try using a different bottle or a different teat? 
7. Maybe you should restart breastfeeding? 
8. Maybe you need to work less and spend more time to take care of her yourself.
9. Just start her on solid food and she will be fine.
10. Before you know it, she is a grown up. Time will fly by. (Try telling that when I'm getting up at night walking over to her when she cries for only the 3rd/ 4th time that night. Or when I'm struggling with feeding her.)
11. Stick to the routine.
12. Don't stick to the routine, and feed her when she wants it. 
13. Feed her smaller bottles.
14. Try less hard.
15. Relax. ( How can you relax when you've been dealing with this for months?!)
16. Oh she doesn't really split up or throw up, so what's the problem?

We are also considering getting Sami a nanny (either her going to the nanny's house or having the nanny over). Initially my hubby is very reluctant to even think about having a nanny, because of the poor experience we have had in the past with my son. However, I kept on reminding him of the good experiences I also had and have! Unfortunately the wonderful nanny Julian had before isn't living around the block, so it's just logistically not possible to have her taking Sami in a long run. She is wonderful and sweet enough to help me out from time to time, so that I can have my break in between to catch up on some sanity.



Right now at the daycare, because of their having numerous of staff with other kids needing attention as well, Sami's feeding issue becomes more challenging there and her sleeping pattern is heavily impacted. Also, you can tell one personnel there ten times of the points you need to pay attention to when taking care of a silent reflux baby, but the next thing you know, it's another person taking care of her that day. Or they just get bored with having to read the instructions you put down, so that won't help Sami. A daycare is basically good for kids to start learning to socialize but at Sami's age, all she does when she is awake is sitting in a bouncer seat watching other kids running around. I bet that can be also tiring, if I imagine myself sitting in the crowd watching them running around and making all sort of noises.

However, finding a proper nanny who is willing to take a reflux baby, and who is experienced enough, plus affordable to us is one major task. I remind myself to be patient on this, as I guess we need to also bump into such person like we did with the great nanny I've met for Julian at the time.

Again, this is the support we as parents with reflux babies miss. Our lives definitely need to keep on going, including our jobs, our attention for my son, household, etc. Yet, without proper support, it can create such a big stress on our shoulder. I know there are a lot more serious and life threatening illnesses out there which need more awareness and support. However, what I don't quite get is in such a modern advanced medical world, how come no one seems to be able to give a solution that can help our daughter to feel better?! Even with certain medical staff, they have no idea what reflux really means!

5 months

For those who have been following my Facebook or my blog will know that we are still struggling with Sami's silent reflux and feeding issues. Probably people are getting bored with my mentioning this over and over again, or repeating how much sleep I'm missing, how much Sami isn't drinking, etc. To be honest, I'm tired of that too, but I've no other choice than to keep looking for ways to make her life and ours eventually easier.

I really hope somehow I will be able to help other parents in the future on raising awareness in the society on baby reflux issues. Yes, reflux won't kill a child! Yet, it kind of kills the bonding time between the mom and the child, as feeding should be the time that is most wonderful thing a mother can do with the baby in the first months of the baby's life. Instead, often we are battling in trying to feed our babies, since we can't afford the idea of our babies starving. No matter how much patience one has, eventually when struggling with lack of sleep and feeding issues along with the crying, you will lose it at a certain point.

I have found myself going from losing it all to losing it for a few seconds, and then calming myself down by talking to my little baby. It's tough really, as when a little creature is arching herself, or getting real mad, you really almost want to fight back but you know you can't. I think most of the parents who have dealt with reflux will fully understand what I mean by this.

I have had evil crazy thoughts which I am ashamed of and feel guilty about, but sometimes I wish I could run away, or not have Sami at all at a certain point. Well, please don't get me wrong, I love her loads and I would like to protect her with my life. Just that life with a reflux baby can be like a roller coaster without an end to it. Basically I got myself up there on the roller coaster, and I need to just wait till it comes to a stop. Again, most moms who have dealt with reflux will probably nod their heads if they are reading this. 

Everyday I get up and tell myself it's a new day, a day closer to her silent reflux leaving us and that there is hope. I'd a melt down moment yesterday morning when trying to feed Sami, and her refusing the bottle after 50 cc. I'd a hard time to let go and let it be. We have this log book, putting down how much she drinks, and sometimes the quantity of milk she has drank feels almost like a score from school. When my hubby went telling me it wasn't Sami's fault, I just lost it and broke into tears. Of course I know it is not her fault! It's no one's fault, and that's the tough part. As parents, you know something is bothering her, but you can't do anything to help fixing it. And when being tired to your bones, you have less capacity to cope with tough times, especially at night or early morning. 

Today I'll be picking up the new formula which the pediatrician has prescribed, so we hope that will also help her, which then can help us. People say between 4-6 months with teething starting, this can cause reflux to flare up even more. So that probably explains the frequent night wakings. I am starting to find myself being "used" to being called out of bed these days. Just that at times, as I'm so tired and stressed, I end up not being able to fall asleep even if Sami is asleep. Isn't it crazy? I think only people who have been through this know what it means by being too tired to sleep. My hubby can't understand it and tell me to learn going back to sleep. When he said that, I really felt no one could understand me which was probably why I'd that melt down moment. 

So my advice to people who have friends or families dealing with hardship, please try to have some sympathy on their feelings. Don't deny their feelings, allow them to express their feelings, acknowledge them instead of judging them, and try to come up with ways that you can help them with, instead of making suggestions on what they should do. And if you don't know what you can do to help them, ask them what you can do to help them instead of staying silent. Also hugging them would really help them to go through this stormy period. Just be there for them. Use today's technology to show them you care, even it's just a few whatsapp messages or facebook posts. If possible, even go by just to say hello, have a cup of tea, or just chat with them. You've no idea how much you can already brighten someone's dark moments. 

I'm thankful that I've some friends who have been doing some of these. I don't have that many friends who would come by to chat or to take over some workload from me, but when I do, I'm so grateful. I'm thankful that I've a nanny who has dealt with reflux from her own kids, so she knows how to handle Sami. She won't mind taking her even if it means she needs to get up at night for her. Even though she doesn't live close by, but at least once or twice in a month to have her helping us out already means a lot to me. 

Making the right choice for our kids....

As a child, I always looked up at my parents, knowing that they were making the right choices for us. Then the older I got, the more I went challenging those choices, asking why they would know they were really making the right choices for us. Now being a mom of two kids, I certainly have come to realization that it's not really about making the right choices, but making the best choices you can at those moments. Sometimes we cannot tell whether they are really right or not, and maybe there is just no definition of whether they are right. What really matters is we have done our best to come up with the best for ourselves and for our kids.



Recently we had to make the decision to go ahead with an oesophagus pH test to see the amount of stomach acid Sami has in her oesophagus, so better medication against reflux can be given accordingly. The thought of having a tube being put through her nostrils down to her oesophagus really worries me how much pain or discomfort our little one would have. Yet, we know by doing this, we can better establish how much she suffers from reflux.

We noticed after having stopped with her medication, she started drinking much better than ever! This gave me such a reassurance that I have not been fighting this battle for nothing, and that it was real bullshit for those medical staff telling me not to pay attention to how much Sami is drinking. Simply Sami was having discomfort or not feeling well after having taken the medication, and therefore she refused to drink. I just wish the medical staff didn't challenge my mother instinct as much as they did.

I've heard during the last few months of them telling me:

• maybe the way I was holding wasn't right, 
• maybe it was the bottle or teats so we bought the whole drugstore home with all sort of teats and bottles,
• maybe it was me who was too stressed and that the baby felt it so she stopped drinking,
• maybe she just doesn't like milk
• maybe she just doesn't need that much
• maybe she has an attitude
• maybe she associates drinking with a bad experience she had been through

We have asked the pediatricians so often whether the medicine's side effects can be bothering her so much that she therefore stops drinking. The answers we have been getting have been:

• We have never had kids having problems with this medicine.
• Nah... that should not be an issue.

If there aren't any side effects, why would they be mentioned on the leaflets of the medicine?! Our little girl isn't capable of telling us what's bothering her, so all we can do as parents is to be her voice as much as we can. During the last months, because of the lack of support I've been getting from the medical team, I have been doubting myself a lot, wondering if I'm really the issue here, making a big deal out of nothing, and that maybe I should accept having a fussy child.

Now looking back, I can proudly stand up and say they were proven wrong and I've been right all along. Ok, I'm no doctor, and I can't treat my child like a doctor can. Yet, I know I've not been overreacting as much as they claim then!

The nights that Sami now drinks well, I really enjoy holding her after her finishing her bottle, all drowsy, leaning her head over my shoulder. I can now find the bond we have stronger. When I've her in my arms, she would have her little arm around me, and I know she knows I'm someone important to her. I love walking to her when she wakes up (ok, not at night when she wakes up at 2 am or 4 am.) and smiles at me. I love seeing her wanting to look at me rather than playing with her toys. These feelings are now getting stronger and stronger, and I can sense somehow things will turn around soon. The light at the end of the tunnel will be there soon. Certainly there will still be sleepless nights, there will still be struggles and so, yet I think this has been quite a big milestone for all of us.



I've also been learning to accept my limits. I think it's something which we should also teach our kids too. Even though I feel guilty for not being there for Sami when they do the oesophagus pH test, as I sent daddy to go instead, I know it's for the best. It won't do Sami any good if she has a mom all scared or emotional over there while daddy may be more calm and can give her the reassurance that it will be fine. I've to tell myself that it's ok to accept this from myself, and that I can do some other things good too. It sounds selfish to say, but it's important to take care of ourselves first before we can be good parents for our kids.